Saturday, October 29, 2011

Down Syndrome Clinic

Yesterday we made the trek up to Charlottesville for Lily's appointment at the Down Syndrome clinic. We didn't really learn anything new, but it was good to talk to the developmental pediatrician there and have her observe Lily.

We did have a very interesting discovery during the visit. Lily was wearing her sleeves/mittens as usual, and at one point we took them off so the doctor could see what she could do with her hands. The first thing she did was scratch her ears (typical). But then she realized that it hurt, started wailing, and could not be consoled. It seemed like she really didn't understand what had happened! Her usual comforting behavior (batting her ears) had produced pain, and she was SO upset and confused. But it didn't seem like she realized that her hands had caused the pain. After a few minutes we put the sleeves back on and she calmed right down, because batting her ears with the mittens on didn't cause pain.

It seems like she has developed a kind of dependence on the mittens, and when she's not wearing them she gets more stressed and agitated. This helps explain why some of her therapy has been getting harder, because we take her mittens off during those times. We're not real sure where to go from here, but the doctor suggested we may need to try a teeny, tiny dose of anti-anxiety medication if she can't relax when her hands are uncovered. Please pray for us for wisdom on how to deal with this situation.

I will leave you with a few pictures...
Lily's glasses:
Lily wearing her glasses:
Lily passed out on Daddy today since she didn't take a nap...

3 comments:

Line-Marie said...

I think she looks beautiful with her glasses!! I love seeing new pictures of your treasure!! thanks

d.E.i.R.d.R.e said...

i wonder if typical mittens or gloves might be a step in the right direction. then she might take them off on her own or with the gloves she would have individual finger movement.

Jess said...

Deirdre, I have been thinking the same thing. I think it's time to get some gloves and try that out.