I know, I know. No posts in forever. "Where are the pictures from Lily's first Christmas?", "What's going on over there?" you say.
I'm getting there. The pictures will come, promise :)
Honestly, I have been trying to figure out why I'm not blogging as much. It puzzles me. But I think the reason that posts have become fewer and far-between is because Lily is getting bigger, stronger, more active, and more demanding of my attention. Especially the last one.
I do have a plan, have been working on it for a while, but it has yet to be implemented. I will explain all when it does get implemented, which should be SOON, and trust me I am ready for it to get started :)
PS-The only reason I managed to type this is because Lily has been occupied with a laundry basket for the last 15 minutes. A miracle.
This morning I took Lily for a follow-up visit with her cardiologist. We got some good news and some bad news.
First the good news: she can stop taking the Lasix! All four chambers of her heart are the correct size and shape. Her tricuspid valve no longer leaks. Her mitral valve still leaks, but that's not a big deal.
The bad news: since her tricuspid valve no longer leaks, they can't use the pressure of the leak to estimate the pressure in her pulmonary artery. This means that there's no way to know if her pulmonary hypertension is gone without....
Yup, this summer Lily will need to have another heart cath surgery to measure the pressure in her pulmonary artery. From what the doctor could see today, it *looks* like her PH is much better, maybe even gone. But there's no way to know for sure. So they are waiting until one year post-repair to do the heart cath to check. Until then she will stay on the Sildenafil (boo), but hopefully the heart cath will show no more PH and she can stop taking it by the end of the summer.