The days are all running together.
Weekend recap: more fever spikes, but no signs of actual infection. This morning they took Lily off the medication keeping her paralyzed, but she woke up instantly and tried to pull the breathing tube out. Her O2 sats dropped to 12% (!) so they quickly put her back on the medication. This afternoon we just happened to be around as they were changing medication and she woke up a little bit, opened her eyes, moved her arms and legs, and tried to pull her NG tube out a few times :). This happened right before Rob left for Blacksburg so it was such a gift for him to see her beautiful eyes open.
Right now Rob's mom is staying with me at the Ronald McDonald house. I'm so thankful she was able to stay so I'm not by myself (and without a car)! Rob and his dad will come back on Friday evening.