Thursday, April 18, 2013

My Poor, Neglected Blog Readers...

...if any of you still exist, ha! I owe you a big update. As I type this with one hand and hold six-week-old Ruby in the other hand:

Yes, miss Ruby Elaina was born on 3-3-13. So far Lily and Ruby merely coexist, although Lily will sign 'baby' when prompted.

Ruby is a pretty good baby overall. The big challenge is the two of them together.

As for Lily, she is making lots of progress. Our insurance approved her ABA therapy and we've been doing it for about two months. I have to admit, it has been rocking my world. I see almost every behavior differently now. We are constantly redirecting behaviors which has been incredibly exhausting and means someone must be physically by Lily's side at ALL times...but we are seeing progress. Her signing vocabulary has increased to 25 signs. Some maladaptive behaviors have decreased. Her fine motor skills are improving. Today she fed herself a bowl of applesauce without throwing the spoon ONCE and that is HUGE!

Here are two clips from our ABA sessions...the first is Lily signing 'bubbles':

This one is Lily matching colors:

Please keep on praying for us. To be completely honest with you, autism is kicking my butt. It's incredibly exhausting and frustrating and I feel like I have failed most days. Plus add having a newborn on top of that and, well, yeah. Let's just say we are in survival mode around here and will likely remain there for a while. Thanks :)


Briana said...

Congratulations!! Ruby is soooo cute. Hey, I think I've mentioned this before but I have autism (and work with people who have it) so if you want some advice on something having to do with that then please feel free to let me know, I would love to help!

We4Kingz said...

Ruby is precious!!! It was so great to meet you and Lily a few months ago at chic fil a!! I've been wondering how you were doing and if the baby had arrived. Thanks for the update! I will be praying for you all.

Sheri said...

Congrats on baby Ruby! Beautiful! Lily has grown so much-goodness. Praying the Lord gives you the daily strength you need to deal with the autism. I am sure you are not failing as you think. :0) Hugs and prayers to you and your fam.

Jill said...

Congratulations on the birth of your sweet daughter!!! She's absolutely beautiful!!! I'm so very happy for you!

And PLEASE give yourself a break. I totally understand the survival mode, but having a newborn changes gentle with yourself, ok? :-)

Praying for you!

rosedel said...

I'm sure you are exhausted. Can you sleep when Lily is at school and Ruby sleeps? Beg friends to scrub your bathroom and bring you food. I see so much progress in Lily, like the therapist got her attention back pretty quick. She likes to move but could accept being repositioned and paid attention. Ruby is beautiful! You are blessed. I wish I lived closer, I would love to meet you and take Lily out for a walk or for a ride in the car or whatever would entertain her for a couple hours. So, I'm gonna pray that lots of people there will do those things for you.

Leslie said...

Congratulations! Ruby is beautiful. Praying for you as you find your new normal with both girls. Praying for rest for your mind and body, peace and encouragement for your heart too!