A Private Room And A Few Less Tubes

This morning we got moved to a private room in the PICU--Yay!! This means we can spend more time with Lily, and that's just what we did today.

Here's Lily this morning:

And here she is this evening:

Do you notice anything different between the two pictures??? Look carefully at Lily's belly...no more chest tube or pacemaker wires!! Those were the (good) highlights of the day.

The bad highlight of the day was a bacterial infection in her central line. She is now back on antibiotics and they removed the central line altogether. Hopefully they won't need to put one back in. She has been spiking fevers all day, and pretty high ones too...around 103.

We also saw a lot of these:

Beautiful blue eyes!

She did have some bad moments this afternoon. At one point she was upset, she stopped breathing to try to cry (which is hard to do with a breathing tube in!), her eyes rolled back in her head, her whole face turned PURPLE and in rushed the respiratory therapist to work on getting her breathing again :(. I must say, that is something I NEVER want to witness again! She also had a period of time where it was very clear to me that she was in a lot of pain: all four limbs were tense and straight, she was shaking slightly and her face was in "cry mode". That was really hard, too. I asked the nurses to increase her morphine, which they did, but that also depresses her respiratory system.

Ok, specific prayer requests:

• That she would get OFF the breathing tube tomorrow! It's kind of a long shot at this point, but I'm still hoping for it.
• That she would not need another central line.
• Healing for her bacterial infection.
• No more fevers.
• That she would not be in pain .
• That she would not stop breathing again.